Welcome to XLH Link. A website focused on sharing the real-life experiences of people with XLH, plus expert information and new ideas.
Top 10 facts
Being diagnosed with XLH is the beginning of a journey. With the right knowledge and support many people learn to manage their condition without it managing them.
Adult XLH symptoms
XLH symptoms vary from person to person. However, there are a number of symptoms to look out for that affect many adults with XLH.